World Congress on Rare Skin Diseases 2024
12
nd
- 14
th
June 2024
Cité internationale universitaire de Paris
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Amphitheater Adenauer
Room Gulbenkian
Room David Weill
E-Posters
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12/06/2024
13/06/2024
14/06/2024
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Sessions
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Bornes ePoster
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S1
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Bornes ePoster
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E-Posters
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Wednesday
,
12 June 2024
Plenary 1 - Skin Biology
10:00
>
11:00
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PL1
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10:00
>
11:00
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Plenary 1 - Skin Biology
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Amphitheater Adenauer
Chairs :
A.
Andrew
SOUTH
,
C.
Cristina
HAS
plus
Workshop 1 - Update on skin cancers and aggressive tumors: predisposing factors
11:10
>
12:40
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WORKSHOP 1
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11:10
>
12:40
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Workshop 1 - Update on skin cancers and aggressive tumors: predisposing factors
•
Amphitheater Adenauer
Supported by the Fondation Isabelle Decazes-de Noüe (FIDN)
Chairs :
C.
Caroline
ROBERT
,
M.
Meriem
JONES
plus
Workshop 2 - Update on Autoimmune bullous diseases
11:10
>
12:40
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WORKSHOP 2
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11:10
>
12:40
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Workshop 2 - Update on Autoimmune bullous diseases
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Room Gulbenkian
Chairs :
D.
Dedee
MURRELL
,
P.
Pascal
JOLY
plus
Worskhop 3 - Update on complex vascular malformations and tumors
11:10
>
12:40
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WORKSHOP 3
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11:10
>
12:40
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Worskhop 3 - Update on complex vascular malformations and tumors
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Room David Weill
Chairs :
A.
Andrea
DIOCIAIUTI
,
M.
Miikka
VIKKULA
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CHIESI Symposium
12:55
>
13:40
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SYMPO1
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12:55
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13:40
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CHIESI Symposium
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Amphitheater Adenauer
Breaking Bad: Changing the Paradigm for Patients with Epidermolysis Bullosa
Chair :
S.
Su
LWIN
plus
Various puzzling cases
13:50
>
14:35
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PUZZLING
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13:50
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14:35
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Various puzzling cases
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Amphitheater Adenauer
Chairs :
A.
Antonio
TORRELO
,
J.
John
MCGRATH
plus
TWI BIOTECH Satellite Symposium
14:45
>
15:30
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SYMPO2
•
14:45
>
15:30
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TWI BIOTECH Satellite Symposium
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Amphitheater Adenauer
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Workshop 4 - Update on auto-inflammatory and autoimmune cutaneous disorders
15:40
>
17:10
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WORKSHOP 4
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15:40
>
17:10
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Workshop 4 - Update on auto-inflammatory and autoimmune cutaneous disorders
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Amphitheater Adenauer
Chairs :
J.
Johann
GUDJONSSON
,
M-L.
Marie-Louise
FRÉMOND
plus
Workshop 5 - Update on Ectodermal Dysplasia and Incontinentia Pigmenti
15:40
>
17:10
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WORKSHOP 5
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15:40
>
17:10
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Workshop 5 - Update on Ectodermal Dysplasia and Incontinentia Pigmenti
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Room Gulbenkian
Chairs :
E.
Encarna
GUILLEN
,
S.
Smail
HADJ RABIA
plus
Workshop 6 - Update on severe drug reactions
15:40
>
17:10
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WORKSHOP 6
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15:40
>
17:10
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Workshop 6 - Update on severe drug reactions
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Room David Weill
Chairs :
R.
Roni
DODIUK-GAD
,
S.
Saskia
ORO
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Workshop 7 - Multidisciplinary networks for a multidisciplinary management (eye disorders, metabolic disorders, etc.)
17:40
>
19:10
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WORKSHOP 7
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17:40
>
19:10
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Workshop 7 - Multidisciplinary networks for a multidisciplinary management (eye disorders, metabolic disorders, etc.)
•
Amphitheater Adenauer
Chairs :
M.
Maya
EL HACHEM
,
M.
Maria Teresa
GARCIA-ROMERO
plus
Workshop 8 - Update on DNA Repair Disorders & photosensitivity
17:40
>
19:10
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WORKSHOP 8
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17:40
>
19:10
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Workshop 8 - Update on DNA Repair Disorders & photosensitivity
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Room Gulbenkian
Supported by the Fondation Isabelle Decazes-de Noüe (FIDN)
Chairs :
F.
Fanny
MORICE-PICARD
,
J.
Jonathan
ZIPPIN
plus
Workshop 9 - Update on Inherited Connective Tissue disorders
17:40
>
19:10
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WORKSHOP 9
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17:40
>
19:10
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Workshop 9 - Update on Inherited Connective Tissue disorders
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Room David Weill
Chairs :
B.
Bert
CALLEWAERT
,
C.
Clair
FRANCOMANO
plus
Welcome drink
19:15
>
20:30
•
S2
•
19:15
>
20:30
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Welcome drink
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Amphitheater Adenauer
Co-organized with Global Skin and Global Albinism Allianc
plus
Thursday
,
13 June 2024
Plenary 2 - Patient Symposium
09:00
>
10:00
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PLENARY 2
•
09:00
>
10:00
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Plenary 2 - Patient Symposium
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Amphitheater Adenauer
Chairs :
M-C.
Marie-Claude
BOITEUX
,
M.
Marc
YALE
plus
Workshop 10 - Update on Epidermolysis bullosa and skin fragility
10:10
>
11:40
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WORKSHOP 10
•
10:10
>
11:40
•
Workshop 10 - Update on Epidermolysis bullosa and skin fragility
•
Amphitheater Adenauer
Chairs :
E.
Elena
POPE
,
M.
Martin
LAIMER
plus
Workshop 11 - Update on fibrosing and premature aging diseases
10:10
>
11:40
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WORKSHOP 11
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10:10
>
11:40
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Workshop 11 - Update on fibrosing and premature aging diseases
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Room Gulbenkian
Chairs :
N.
Nicolas
LEVY
,
C.
Christine
BODEMER
plus
Plenary 3 - Genetic session: Technical and clinical challenges in the NGS era
12:10
>
13:10
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PLENARY 3
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12:10
>
13:10
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Plenary 3 - Genetic session: Technical and clinical challenges in the NGS era
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Amphitheater Adenauer
Chairs :
J.
Johann
BAUER
,
E.
Eli
SPRECHER
plus
KRYSTAL BIOTECH Symposium
13:20
>
14:05
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SYMPO3
•
13:20
>
14:05
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KRYSTAL BIOTECH Symposium
•
Amphitheater Adenauer
Towards a revolution in the management of Dystrophic Epidermolysis Bullosa – from palliative care to targeted corrective therapies
Chair :
P.
Peter
MARINKOVICH
plus
BOEHRINGER INGELHEIM Symposium
14:15
>
15:00
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SYMPO4
•
14:15
>
15:00
•
BOEHRINGER INGELHEIM Symposium
•
Amphitheater Adenauer
Generalized pustular psoriasis in 2024: better understanding for better care
Chair :
M.
Manuelle
VIGUIER
plus
ALMIRALL Satellite symposium
14:15
>
15:00
•
SYMPO5
•
14:15
>
15:00
•
ALMIRALL Satellite symposium
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Room Gulbenkian
What’s new in cutaneous mosaic disorders?
plus
Rising Stars
15:30
>
17:00
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Rising Stars
•
15:30
>
17:00
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Rising Stars
•
Amphitheater Adenauer
Chairs :
B.
Bert
CALLEWAERT
,
E.
Erwin
TSCHACHLER
plus
Workshop 12: Francophone session
15:30
>
17:00
•
WORKSHOP 12
•
15:30
>
17:00
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Workshop 12: Francophone session
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Room Gulbenkian
Chairs :
H.
Hamida
TURKI
,
A.
Anne
WELFRINGER
plus
Workshop 13 - Update on Cornification disorders
17:10
>
18:40
•
WORKSHOP 13
•
17:10
>
18:40
•
Workshop 13 - Update on Cornification disorders
•
Amphitheater Adenauer
Chairs :
J.
John
MCGRATH
,
T.
Takuya
TAKEICHI
plus
Workshop 14 - Patient Education Programs
17:10
>
18:40
•
WORKSHOP 14
•
17:10
>
18:40
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Workshop 14 - Patient Education Programs
•
Room Gulbenkian
Chairs :
S.
Suzanne
PASMANS
,
S.
Smail
HADJ RABIA
plus
Friday
,
14 June 2024
Worldwide clinical cases
09:00
>
09:30
•
CC
•
09:00
>
09:30
•
Worldwide clinical cases
•
Amphitheater Adenauer
Chairs :
M.
Margarita
LARRALDE
,
G.
Gail
TODD
,
C.
Carmen
SALAVASTRU
plus
Best Abstracts
09:30
>
10:20
•
Best Abstracts
•
09:30
>
10:20
•
Best Abstracts
•
Amphitheater Adenauer
Chairs :
M.
Maya
EL HACHEM
,
B.
Branka
MARINOVIC
plus
Plenary 4 - New tools for research and therapeutics
10:50
>
12:20
•
PLENARY 4
•
10:50
>
12:20
•
Plenary 4 - New tools for research and therapeutics
•
Amphitheater Adenauer
Chairs :
A.
Amy
PALLER
,
C.
Christine
BODEMER
plus
Best presentation awards
12:20
>
12:35
•
AWARDS
•
12:20
>
12:35
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Best presentation awards
•
Amphitheater Adenauer
plus
Rare Skin disorders: how to progress all together - Improve access to diagnostic and treatments
12:35
>
13:45
•
Ending
•
12:35
>
13:45
•
Rare Skin disorders: how to progress all together - Improve access to diagnostic and treatments
•
Amphitheater Adenauer
plus
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