PLENARY 3 - Patient organisation - What's new - Successes and Difficulties

09:05 • INT2 • Setting the Scene: Mental Wellbeing in Rare Disease > L. Lex VAN DER HEIJDEN (Silvolde) 09:15 • INT3 • PRIDD: Validating the Mental Health Impact of Living with a Rare Skin Disease > M. Marc YALE (Roseville/California) 09:25 • INT4 • Psychological States of Loneliness, Social Isolation and Psychological Deprivation in Patients with Albinism > G. Galina GENING (Moscow) 09:35 • INT5 • The Profound Impact on Mental Health when Living with Ichthyosis: Insights from Qualitative Research > J. Jolien VAN DER GEUGTEN (Amersfoort) 09:45 • INT6 • Interaction of Psychosocial Factors and Well-Being of Women Caring for a Sick Child: The Impact of the Child’s Level of Dependency > M. Mateja KRZNAR (Zagreb) 09:55 • INT7 • Addressing the Mental Health Needs of Rare Skin Disease Patients: GPP Care Network > P. Paul Albert MENDOZA (Makati City) 10:05 • INT8 • Discussions