World Congress on Rare Skin Diseases 2024 12nd - 14th June 2024 Cité internationale universitaire de Paris

Rare Skin disorders: how to progress all together - Improve access to diagnostic and treatments

Friday, June 14, 2024
• Ending • 12:35 PM > 1:45 PM • Rare Skin disorders: how to progress all together - Improve access to diagnostic and treatments • Amphitheater Adenauer

12:35 PM • INT48 • Collaborating with industry stakeholders to drive care for EB: DEBRA International > E. Emeline BAILLARGEAULT, R. Ritu JAIN 12:50 PM • INT49 • All together against rare skin diseases > C. Christine BODEMER 1:05 PM • INT53 • Access to diagnostic and treatments - Panel session > Y. Yann LE CAM 1:05 PM • INT50 • How global policy on rare diseases can empower your own efforts? > Y. Yann LE CAM 1:15 PM • INT51 • Using real-life data to meet the needs of rare disease patients > V. Valérie DENUX 1:25 PM • INT52 • Discussion > M-C. Marie-Claude BOITEUX, E. Elena POPE, E. Eli SPRECHER

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