World Congress on Rare Skin Diseases 2024 12nd - 14th June 2024 Cité internationale universitaire de Paris

Rare Skin disorders: how to progress all together - Improve access to diagnostic and treatments

Friday, June 14, 2024
Ending 12:35 PM > 1:45 PM Rare Skin disorders: how to progress all together - Improve access to diagnostic and treatments Amphitheater Adenauer

12:35 PM INT48 Collaborating with industry stakeholders to drive care for EB: DEBRA International > E. Emeline BAILLARGEAULT, R. Ritu JAIN 12:50 PM INT49 All together against rare skin diseases > C. Christine BODEMER 1:05 PM INT53 Access to diagnostic and treatments - Panel session > Y. Yann LE CAM 1:05 PM INT50 How global policy on rare diseases can empower your own efforts? > Y. Yann LE CAM 1:15 PM INT51 Using real-life data to meet the needs of rare disease patients > V. Valérie DENUX 1:25 PM INT52 Discussion > M-C. Marie-Claude BOITEUX, E. Elena POPE, E. Eli SPRECHER

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