World Congress on Rare Skin Diseases 2024 12nd - 14th June 2024 Cité internationale universitaire de Paris

Workshop 14 - Patient Education Programs

13 June 2024
• WORKSHOP 14 • 17:10 > 18:40 • Workshop 14 - Patient Education Programs • Room Gulbenkian
17:10 • WS14.3 • Education programs for rare diseases patients in Europe, the European perspective of the patient (child-parent, adolescent, adult) and the professional (regional and expert center) in ichthyosis and congenital nevi as showcases > K. Karin VELDMAN, S. Suzanne PASMANS, M. Marjolein VAN KESSEL 17:30 • WS14.4 • Education programs for rare diseases patients in North America > C. Catherine MCCUAIG 17:50 • WS14.6 • Patient education programmes on rare skin diseases: specificities and perspectives > S. Smail HADJ RABIA 18:10 • WS14.5 • Round Table > M-C. Marie-Claude BOITEUX, S. Smail HADJ RABIA

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