World Congress on Rare Skin Diseases 2024
12
nd
- 14
th
June 2024
Cité internationale universitaire de Paris
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Abstract
Workshop 14 - Patient Education Programs
Thursday, June 13, 2024
•
WORKSHOP 14
•
5:10 PM
>
6:40 PM
•
Workshop 14 - Patient Education Programs
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Room Gulbenkian
5:10 PM
•
WS14.3
•
Education programs for rare diseases patients in Europe, the European perspective of the patient (child-parent, adolescent, adult) and the professional (regional and expert center) in ichthyosis and congenital nevi as showcases
>
K.
Karin
VELDMAN
,
S.
Suzanne
PASMANS
,
M.
Marjolein
VAN KESSEL
5:30 PM
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WS14.4
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Education programs for rare diseases patients in North America
>
C.
Catherine
MCCUAIG
5:50 PM
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WS14.6
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Patient education programmes on rare skin diseases: specificities and perspectives
>
S.
Smail
HADJ RABIA
6:10 PM
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WS14.5
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Round Table
>
M-C.
Marie-Claude
BOITEUX
,
S.
Smail
HADJ RABIA
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